This is the motto of a website I stumbled upon the other day. It is called Feeding Tube Awareness. I especially love their Facebook page!
It is good for me to see all the mom's dealing with feeding tubes for a million different reasons. I don't live near anyone I know that has a child with a feeding tube. It is so frustrating some times because there is so much I don't know. I've already learned tons just by reading what others do. It has helped me realize I need to be more proactive with my insurance. I also enjoy that they discuss eating problem, suggesting foods and ways to encourage eating.
I don't know if there are any others affected by Glycogen Storage Disease, but I hope to find out soon.
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